Luna Was Diagnosed With Biliary Atresia — Now Her Mother Is Turning Pain Into Purpose Through Big Yellow Friday.T937
That’s why she is such a passionate advocate for Big Yellow Friday, an event dedicated to raising awareness for childhood liver disease. However, for Sophie, one event is never quite enough.
In preparation for Big Yellow Friday, Sophie gathered her fundraising materials and began approaching local businesses, schools, and even her own family to get involved. First, she went to her children’s school and nursery, Millbrook Primary in Telford, and her local Spar store.
The response was overwhelming, with everyone eager to support Luna’s cause. But Sophie didn’t stop there. She turned to her dad, asking him to involve his work colleagues at Kuehne and Nagel, who happily agreed to participate. The more people who joined in, the more her heart swelled with gratitude and pride.
Her mum, Nikki, who had recently started working at ABC Nurseries, was just as eager to help raise awareness for Luna and children like her. Nikki shared the details of Big Yellow Friday with her colleagues, and she was thrilled when all four nurseries in Telford decided to take part.
"My mum only started working at ABC just before Christmas, so the fact that they went to so much effort for Big Yellow Friday in honor of Luna is just amazing," Sophie shared with a smile. "They really did go above and beyond, and their display was just beautiful."
Stephanie Thomas, the manager of ABC in Hadley, shared her own excitement about the event. "We wanted to support Nikki and her family, and we were very happy to join in with Big Yellow Friday.
It was great fun—we had yummy cake sales all week, and on the day itself, we invited children to wear yellow and held a raffle." The effort paid off, as the nursery raised an impressive £566 for Sophie’s fundraising total. "We’re so pleased to have contributed to Sophie’s fantastic fundraising effort," Stephanie said.
Sophie reflected on how much it meant to her to have the community rally around her family. The outpouring of support from local schools, businesses, and her own family was a reminder that together, we can make a difference. The funds raised on Big Yellow Friday would go directly toward the Children’s Liver Disease Foundation (CLDF), helping support vital research and services for children like Luna, who are living with liver disease.
Luna’s diagnosis with biliary atresia, a liver condition in which bile ducts are blocked or absent, had been a shock to Sophie and her husband, but it was something they were determined to face head-on. Luna had to undergo a life-saving procedure called the Kasai surgery, which helps to drain bile from the liver, but Sophie knew that raising awareness for childhood liver disease was just as important as supporting Luna’s medical journey. With that in mind, she wanted to make sure that Luna’s story was shared and that others were empowered to help.
For Sophie, Big Yellow Friday was more than just a fundraiser—it was a way to unite the community in a shared mission to support children living with liver conditions. The outpouring of love and effort from everyone who participated made the day even more meaningful. From cake sales to yellow dress days, from raffles to fundraising displays, the community in Telford had truly embraced the cause.
With every donation, every raffle ticket sold, and every yellow outfit worn, Sophie felt the impact of the collective effort. The awareness raised by these events went beyond the funds raised—it opened up conversations and gave a voice to children like Luna, whose journey with biliary atresia is one that deserves to be heard.
As the day of Big Yellow Friday passed and the funds were counted, Sophie couldn’t help but feel overwhelmed by the support. With her family, friends, and even strangers coming together to help, she knew that Luna’s story was touching hearts and sparking change.
"It was wonderful to see so many people support Luna and children like her. I’m so grateful for everyone who participated," Sophie said, her heart full.
For Sophie, this experience reinforced the importance of community and the impact we can have when we work together toward a common goal. Raising awareness for liver disease in children may be an ongoing battle, but with every event like Big Yellow Friday, the hope is that more lives will be touched, more children will receive the support they need, and, ultimately, the disease will be understood and defeated.
Sophie’s journey as a mother to a child with biliary atresia has not been an easy one, but through her efforts, Luna’s story is becoming a powerful example of strength, resilience, and love. Sophie’s determination to raise awareness and funds for liver disease in children is unwavering, and Big Yellow Friday was just one chapter in her mission to ensure that other families have the support and resources they need.
As the event wrapped up, Sophie looked back on the day with immense gratitude, knowing that the fight for children like Luna wasn’t just about medical treatment—it was about building a community, spreading awareness, and giving hope to every family touched by childhood liver disease. Through events like these, Sophie and her family continue to make a difference, one yellow day at a time.
Miley’s Journey: A Remarkable Heart Warrior’s Courage and Resilience in the Fight Against Hypoplastic Left Heart Syndrome.T779
My daughter Miley was born in 2022 with a diagnosis that changed our lives forever—Hypoplastic Left Heart Syndrome (HLHS). HLHS is a rare and complex congenital heart defect where the left side of the heart is severely underdeveloped.
This means that the heart cannot effectively pump blood to the body, and without immediate intervention, the condition is fatal. From the moment we heard those words, our world was flipped upside down, and we found ourselves on a journey no parent could ever prepare for. But little did we know, our beautiful girl was about to show us just how strong and resilient she truly was.
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